SEPTEMBER 17th. Doors open at 6:00pm. Races being at 7:00pm.
PFEM Hall & Banquet Center
115 McMenamy Rd, St Peters
ABOUT THE PCDH19 ALLIANCE
Our mission is to improve the lives of children and families affected by PCDH19 Epilepsy.
WHAT IS PCDH19?
PCDH19 Epilepsy is a condition with a wide spectrum of severity in seizures, cognitive delays and other symptoms, which are all caused by a mutation of the PCDH19 gene on the x chromosome.
WHAT ARE THE SYMPTOMS?
The most consistent feature of this disease is seizures that come in clusters and last for days or week at a time and do not respond well to available medications. Seizures are often drug resistant and difficult to control. These seizures are accompanied by rapid oxygen desaturations and cyanosis.