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SEPTEMBER 17th. Doors open at 6:00pm. Races being at 7:00pm.

PFEM Hall & Banquet Center

115 McMenamy Rd, St Peters

$25/ticket.

 
https://www.eventbrite.com/e/louies-mighty-race-for-hope-tickets-382591620837?utm-campaign=social&utm-content=attendeeshare&utm-medium=discovery&utm-term=listing&utm-source=cp&aff=escb

 

PCDH19 Epilepsy 

ABOUT THE PCDH19 ALLIANCE

Our mission is to improve the lives of children and families affected by PCDH19 Epilepsy. 



WHAT IS PCDH19?

PCDH19 Epilepsy is a condition with a wide spectrum of severity in seizures, cognitive delays and other symptoms, which are all caused by a mutation of the PCDH19 gene on the x chromosome.

 

WHAT ARE THE SYMPTOMS?
The most consistent feature of this disease is seizures that come in clusters and last for days or week at a time and do not respond well to available medications. Seizures are often drug resistant and difficult to control. These seizures are accompanied by rapid oxygen desaturations and cyanosis. 

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